Preparing HEAL-Generated Data for Sharing

Research teams funded by the Helping to End Addiction Long-Term Initiative®, or NIH HEAL Initiative®, must make their HEAL data Findable, Accessible, Interoperable, and Reusable (FAIR) in line with the HEAL Data Sharing Policy and the broader efforts across NIH as outlined in the NIH Strategic Plan for Data Science.

The Renaissance Computing Institute at the University of North Carolina at Chapel Hill/RTI International (RENCI/RTI), known as the HEAL Data Stewardship Group (HEAL Stewards), is funded to work with research teams throughout the HEAL Initiative to provide guidance in implementing FAIR data management and sharing practices for the diverse datasets generated by HEAL-funded projects.

The HEAL Stewards established website provides guidelines, recommendations, training events, and other relevant information for making HEAL data FAIR and discoverable as part of the HEAL Data Ecosystem.

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About the HEAL Data Ecosystem

The HEAL Data Ecosystem aims to transform research data, findings, and publications into a virtual, annotated, searchable catalog in which datasets and findings from different studies can be analyzed, compared, and combined.

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Common Data Elements (CDEs) Program

To facilitate cross-study comparisons and improve the interpretability of findings, clinical pain research grantees collaborate and agree to use common data elements for patient-reported outcomes (PROs).

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Public Access and Data Sharing Plan

Through the NIH HEAL Initiative Public Access and Data Sharing Policy (the Policy), NIH seeks to create an infrastructure that addresses the need for researchers, clinicians, and patients to collaborate.

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