Demystifying Data Sharing

The NIH HEAL Initiative^® is building a community of researchers aiming to accelerate scientific discovery and develop solutions to address the national opioid public health crisis. Hundreds of projects and studies across the nation are part of this critically important effort, and in order for researchers to collectively and collaboratively get the most out of the vast array of data being produced, the NIH HEAL Initiative aims to build a model for simple and streamlined data sharing within, and beyond, this community. 

In this webinar, Kira Bradford of the HEAL Data Stewardship Group will lead a panel discussion around demystifying data sharing. The panel will feature HEAL Program Officers involved in data sharing and access; they will provide their perspectives and clarifications around data sharing as well as answer questions live during the webinar. Participants can expect to learn more about FAIR data principles, how these principles apply to HEAL study data, and the long-term and expansive benefits of data sharing, particularly with regard to addressing an urgent and widespread public health crisis.

Dr. Christine Colvis is the director of the National Center for Advancing Translational Sciences (NCATS) Office of Drug Development Partnership Programs (ODDPP). ODDPP promotes innovations that improve the efficiency of the discovery and development of or improve the quality or accessibility of treatments for patients. Dr. Colvis leads programs ranging from very early preclinical discovery and exploration of new treatment modalities with the potential to expand the target landscape to the development of therapeutics through early-stage clinical trials. She is the co-chair for the NIH HEAL Initiative and the NIH-wide Preclinical and Translational Research in Pain Management team. She completed postdoctoral research at the National Eye Institute after receiving her doctorate in biochemistry and molecular biology from Oregon Health and Science University.

Dr. Michael Oshinsky is a co-Chair for the HEAL Pain Preclinical and Translational workgroup and the Program Director for Pain and Migraine at the National Institute of Neurological Disorders and Stroke. He earned a Ph.D. in neurobiology and behavior from Cornell University and was the Director of Preclinical Research at the Jefferson Headache Center at Thomas Jefferson University, before he came to NIH 7 years ago. 

Dr. Wendy Weber is Branch Chief for the Clinical Research in Complementary and Integrative Health Branch in the Division of Extramural Research at the National Center for Complementary and Integrated Health (NCCIH). The Clinical Research Branch oversees all NCCIH-supported clinical trials to develop and test interventions. Dr. Weber’s portfolio and projects that she oversees include the NIH HEAL Initiative Pragmatic and Implementation Studies for the Management of Pain (PRISM) program, the Pragmatic Trials Collaboratory, and the NIH-DoD-VA Pain Management Collaboratory. Dr. Weber earned a doctorate of philosophy in epidemiology and a master of public health from the University of Washington. She earned a doctorate of naturopathic medicine (N.D.) from Bastyr University.

Dr. Shelley Su is a Health Scientist Administrator at the National Institute on Drug Abuse (NIDA). Dr. Su manages a portfolio on implementation science, chronic pain, and services for cannabis use disorders, and leads the translational efforts bridging neuroscience and services research. Dr. Su received her Ph.D. from the University of California, Santa Barbara, where she conducted research on the neurobiology of positive and aversive effects induced by drugs of abuse, the influence of extended access or escalation on cocaine-associated opponent process actions, and sex differences.

Dr. Jennifer Villani is the Associate Director of the HEALing Communities Study at NIDA. She previously worked in the NIH Office of Disease Prevention, where she conducted a wide range of research activities to advance disease prevention. She developed and tested a new method for portfolio analysis that utilizes machine learning to characterize NIH prevention research in areas including substance use and health services. In addition, Dr. Villani was the lead NIH representative to the Healthy People Federal Interagency Workgroup, where she oversaw and coordinated NIH participation in the development of the Healthy People 2030 initiative. She earned her Ph.D. in health services research from the University of Maryland, College Park. Her research foci include preventive medicine, substance use prevention, patient-provider communication, health literacy, and health care disparities.

For More Information, Contact:

Julie Hayes at [email protected]