The Helping to End Addiction Long-term® Initiative, or NIH HEAL Initiative®, approaches the opioid crisis from two major angles: enhancing pain management and addressing opioid misuse and addiction. From mindfulness meditation to aid in recovery from addiction to studies to understand a person’s individual response to pain, researchers in hundreds of funded projects across the country are exploring diverse paths to reach these goals and overcome obstacles.
“Stigma is a major obstacle to our efforts to help end the opioid crisis,” said Rebecca G. Baker, Ph.D., director of the NIH HEAL Initiative. “We not only recognize the barriers stigma creates for people with pain and addiction but are working intentionally to address stigma through HEAL research.”
That’s why the NIH HEAL Initiative’s inaugural Investigator Meeting in January dedicated a plenary panel to a conversation about stigma, which was a recurrent theme in discussions of research across the initiative.
The Surgeon General of the United States, VADM Jerome Adams, M.D., M.P.H., headlined the panel, after his keynote address on stigma.
Starting a conversation about stigma
It can’t be easy to tell a roomful of strangers about your little brother’s struggle with addiction. But that’s exactly what the Surgeon General of the United States did at the HEAL Investigator Meeting.
“I’m often asked, as Surgeon General, what I think the biggest killer is out there, whether it’s cigarettes or obesity or fentanyl,” said Adams. “I feel the biggest killer out there is actually stigma.”
Adams’ brother Phillip had anxiety and depression at a young age. He started using alcohol, then marijuana. One day, someone gave him a pill at a party. That soon led Phillip to heroin, and eventually he started committing crimes to support his addiction. Now he is incarcerated.
Adams believes Phillip self-medicated his anxiety and depression with drugs and alcohol — and that stigma made his mental health and addiction worse.
“We know that there is a stigma attached to acknowledging that you have mental health issues,” Adams said, adding that drug addiction is often seen as a moral failing, too. “If we’d looked at it as a disease, perhaps my brother would have been given help sooner, before his addiction worsened and before he got involved in the criminal justice system.”
Stigma prevents better pain management and addiction treatment
Several meeting attendees noted that pain, pain treatment, and addiction are strongly linked with stigma.
“For people with persistent pain, a lot of times they feel like they should just be able to do better,” said Lynn DeBar, Ph.D., M.P.H., a clinical psychologist and behavioral health researcher at Kaiser Permanente Washington Health Research Institute in Seattle. “A lot of times, what people feel they’re being told is, ‘This is something that is all in my head — that I should be able to just be stronger willed.’”
Meanwhile, doctors are frustrated, both because pain can be very difficult to treat and because there is no objective way to measure it. Doctors may doubt a patient with pain and refuse to prescribe medication. Pharmacists may suspect someone with an opioid prescription of misusing drugs and decide not to fill the prescription. Stigma can therefore prevent treatment and may even push people with chronic pain to seek out illegal drugs.
For people with opioid use disorder, internalized stigma can prevent them from sticking with treatment and even set them on a path to relapse, overdose, and death.
“Imagine telling your mom that you’re on methadone,” said Valerie Earnshaw, Ph.D., a social psychologist at the University of Delaware, Newark. “And your mom tells you, ‘Well, it’s great that you’re in recovery, but aren’t you just substituting one drug for another?’”