Common Data Elements (CDEs) Repository

The NIH HEAL Initiative’s Common Data Elements (CDEs) program aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.  

HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.

The “core” questionnaires in ten domains, demographic information, and opioid usage are required for the clinical pain HEAL grants and are organized depending on the type of pain and population being studied.

Most HEAL pain studies would fall into one of several categories that would determine their core questionnaires: adult acute pain, adult chronic pain, or pediatric pain (both acute and chronic pain). These categories are listed in the “core or supplemental” column.

The “Advanced Search” function can filter the questionnaires by the specific type of pain research being conducted (acute vs. chronic), the patient population (adult vs. pediatric), and the domain (research topic) of the questionnaires.

For core questionnaires with multiple versions listed (e.g., GAD-2, GAD-7), studies can use any one of these versions, but at a minimum must use the shortest version listed.

The text box allows users to search for a specific questionnaire or research topic area.

Files can be downloaded directly from the links in the second column. Filenames that include the suffix “CRF” are questionnaires (case-report forms) and filenames with the suffix “CDE” are the CDE files with variable names and coding information.

To download more than one file at a time, use the checkboxes on the left hand side to select the files you would like to download. After you click the "Download Selected Files" button, you will get a message at the top of the page saying, "Export file created, Click here to download." This will download a zipped folder with your selections.

“Download list” allows users to download the list of questionnaires that are displayed as search results.

For questionnaires that are copyrighted and require a license for use, the files linked below contain instructions on how to properly obtain a license for use.

If you have any questions, please contact [email protected].

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Description File Name File Language Core or Supplemental Research Topic
The Alcohol Use Disorders Identification Test (AUDIT) measures alcohol consumption, drinking behaviors, and alcohol-related problems. English
  • Supplemental
 Substance Use
The Alcohol Use Disorders Identification Test (AUDIT) measures alcohol consumption, drinking behaviors, and alcohol-related problems. Spanish
  • Supplemental
 Substance Use
The Beck Anxiety Inventory (BAI) is a self report anxiety inventory consisting of 21 questions. The BAI assesses frequency of anxiety symptoms over a 1 week period while minimizing their relationship with depression. English
  • Supplemental
 Anxiety
The Brief Assessment of Recovery Capital (BARC-10) is a self-report questionnaire to evaluate a person's resources and strengths, also known as "recovery capital," that can support their recovery from substance use disorders. English
  • Supplemental
 Substance Use
The Behavior and Symptom Identification Scale 24 (BASIS-24) assesses treatment outcomes by measuring symptoms and functional difficulties experienced by individuals seeking mental health services. English
  • Supplemental
 Behavioral health
The Beck Depression Inventory 1 (BDI) is a 21-item, self-report rating inventory that measures characteristic attitudes and symptoms of depression. English
  • Supplemental
 Depression
The Beck Depression Inventory II is a brief, self-report inventory designed to measure the severity of depression symptomatology. English
  • Supplemental
 Depression
The Big Five Inventory (BFI) 10 is a 10-item scale that measures the five personality traits: Extraversion, Agreeableness, Conscientiousness, Emotional Stability, and Openness. English
  • Supplemental
 Fatigue
The Big Five Inventory 10 (BFI 10) is a 10-item scale measuring the Big Five personality traits Extraversion, Agreeableness, Conscientiousness, Emotional Stability, and Openness. The scale was developed based on the 44-item Big Five Inventory. English
  • Supplemental
 Personality
The Big Five Inventory 2 (BFI 2) is a scale measuring the Big Five personality traits Extraversion, Agreeableness, Conscientiousness, Emotional Stability, and Openness. The scale was developed based on the 44-item Big Five Inventory. English
  • Supplemental
 Personality
The Brief Pain Inventory SF 7 day recall (BPI SF) assesses the severity of pain and the impact of pain on daily functions, over the past 7 days. English
  • Supplemental
 Pain Quality
The Brief Pain Inventory Long Form (BPI LF) assesses the severity of pain and the impact of pain on daily functions. English, Spanish
  • Supplemental
 Pain Quality
The Brief Pain Inventory (BPI SF) assesses the severity of pain and the impact of pain on daily functions. English, Spanish
  • Supplemental
 Pain Quality
The Coping Orientation to Problems Experienced Inventory (Brief-COPE) is a 28 item self-report questionnaires measures effective and ineffective ways to cope with a stressful life event. English
  • Supplemental
 Coping with pain
The Brief Religious Coping (Brief RCOPE) is a 14-item measure of religious coping with major life stressors. English
  • Supplemental
 Values
The Cognitive and Affective Mindfulness Scale Revised (CAMS R) measures the degree to which individuals experience their thoughts and feelings and does not require meditation training. English
  • Supplemental
 Mindfulness
The Cancer Behavior Inventory-Brief Version (CBI-B) a 12-item measure of self-efficacy for coping with cancer derived from the longer 33-item version. English
  • Supplemental
 Cancer
The Children's Behavior Questionnaire Very Short Form (CBQ-VSF) uses caregiver reports to measure a young children's temperament, in three broad domains. English
  • Supplemental
 Behavioral health